Lillie D. Shockney

Lillie D. Shockney, RN, BS, MAS, is the University Distinguished Service Professor of Breast Cancer and Professor of Surgery and Oncology at Johns Hopkins University School of Medicine. A two-time survivor of breast cancer, Shockney works both as a nurse navigator supporting patients and as a medical advisor and administrator developing programs for improving patient quality of life, in particular for those with metastatic breast cancer.

Shockney has served on or advised numerous national-level organizations. In 1997, she testified before the U.S. Senate committee regarding the Women's Health and Cancer Rights Act. the Academy of Oncology Nurse & Patient Navigators (AONN+, 2009); She has been recognized for her work with awards at state, national and international levels. The Academy of Oncology Nurse & Patient Navigators has named its Lillie D. Shockney Lifetime Achievement Award in her honor. to Frank and Charmayne Dierker and grew up on a dairy farm in Maryland. Having aspired to be a nurse from an early age, she received a three-year diploma from the Macqueen Gibbs Willis School of Nursing in Easton, Maryland in 1974. She earned a bachelor's degree in Health Care Administration from St. Joseph's College in 1982. She earned a Master's in Administrative Science (M.A.S.) from Johns Hopkins University in 1988.

Career

Johns Hopkins In 1983, Shockney joined the Department of Neurosurgery at Johns Hopkins as a nurse, working with patients who had glioblastoma, an almost-always fatal form of brain cancer. From 1987 to 1997 Shockney served as the Director of Performance Improvement and Utilization Management. Approximately ten years after her diagnosis, Shockney had DIEP flap reconstruction surgery.

The experience of being a breast cancer patient led Shockney to work with breast cancer patients and to develop programs to improve their care and quality of life. Shockney chose to combine her expertise and her personal experience as a breast cancer survivor in support of others. Recognizing the impact of non-medical factors on the success or failure of medical treatment, nurse navigators help patients to deal with practical issues of daily life like arranging child care or transportation as well as the complexities of the medical system. The approach was originally developed by Harold P. Freeman, working with cancer patients in Harlem. After Shockney reported the impact of the program at Johns Hopkins Hospital on appointment completion rates and timeliness of care, breast cancer patients became a primary patient population for nurse navigation. Shockney emphasizes the importance of identifying each individual's goals and focusing on what they hope to achieve.

Shockney has also developed small group retreats for metastatic breast cancer patients and their spouses or caregivers, to help them focus on quality of life throughout their lives, In a situation where people feel vulnerable and overwhelmed, Shockney emphasizes the importance of enabling them to regain a sense of control in their lives.

In 2008, Shockney was appointed as the University Distinguished Service Assistant Professor of Breast Cancer at Johns Hopkins. For the first time, a hospital nurse received the level of recognition of being designated for extraordinary distinguished service. and made a professor of Surgery and Oncology. Again she was the first nurse in the country to be appointed at such a level.

In 2011, Shockney became Director of the Johns Hopkins Cancer Survivorship Programs in addition to being administrative director of the Breast Center. She remained in both positions until November 2018, when she retired from the directorships. She continues to serve on the faculty of the Johns Hopkins University School of Medicine.

Beyond Johns Hopkins The impact of Shockney's advocacy, publications and programs has been felt far beyond Johns Hopkins. Schockney's programs for nurse navigation and patient retreats have been adopted by other institutions.

In 1995, Shockney and her mother, Charmayne Dierker, co-founded the national nonprofit Mothers Supporting Daughters with Breast Cancer.

In 2003, she became chair of the National Quality Initiative of the National Consortium of Breast Centers (NCBC).

In 2009, Shockney co-founded the Academy of Oncology Nurse & Patient Navigators (AONN+). She served as its program director from 2009 to 2019. When AONN+ became a member of the American College of Surgeons Commission on Cancer (CoC) in 2015, Shockney represented the organization as its commissioner to the CoC. In 2020, the AONN+ Foundation for Learning, Inc. received national accreditation from the ANSI National Accreditation Board (ANAB) and its parent, the American National Standards Institute (ANSI). The Foundation became the only national program with certification under ISO/IEC 17024 for programs in oncology nurse and patient navigation.

With Terry Langbaum, Shockney helped to develop the Work Stride: Managing Cancer at Work employee benefits program at Johns Hopkins. Launched there in 2012, it was offered to other employers as of 2016 through a collaboration with Johns Hopkins HealthCare Solutions.

Shockney served as the Editor-in-Chief of the Journal of Oncology Navigation & Survivorship from 2012 to 2023. She has also served on the editorial boards of journals such as the Annals of Nursing and Practice.

In 2021, Shockney co-founded the Association of Chronic & Complex Care Nurse Navigators (ACCCNN) with Billie Lynn Allard and Jennifer Edwards. The professional association held its inaugural summit in 2023, for nurse navigators caring for patients with chronic diseases.

Awards and honors Shockney has received both national and state level awards for her work, including the following: 2002, Excellence in Breast Cancer Education Award, Oncology Nursing Society 2003, Impact Award, National Corsortium of Breast Centers 2005, Professor of Survivorship award, Susan G. Komen Foundation, the first non-physician to receive this award. 2009, Excellence in Survivor Advocacy Award, Oncology Nursing Society 2010, Maryland Women's Hall of Fame 2012, "Amazing Nurse", Johnson & Johnson Campaign for Nursing's Future 2014, Catherine Logan Award for Service to Survivorship, National Coalition for Cancer Survivorship 2018, AONN+ Lifetime Achievement Award, Academy of Oncology Nurse & Patient Navigators (AONN+), inaugural recipient, subsequently renamed the Lillie D. Shockney Lifetime Achievement Award 2019, WebMD Health Hero Awards 2020, ELITE 2020 Master Educator, PM360.

Selected publications