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Portrait of Hayley Okines

Hayley Okines

1997 – 2015

British activist and author with progeria

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About Hayley Okines

Lived 1997 – 2015 (aged 17). Hayley Okines was a British activist, known for Progeria.

Television appearances Okines was the subject of television specials in both Europe and North America. Discovery Health aired a special titled Extreme Aging: Hayley's Story, which focused on the balance of the disease being currently terminal but with a possible cure on the horizon. In the UK, a television documentary titled Extraordinary Lives also discussed Okines, her condition, and her options.

When she was 13 years old, she was featured on a French television show on 20 January 2012 called Tous Différents ("All Different", NT1).

When she was ten years old, Okines was featured in "Hope for Hayley", an episode of the British series Extraordinary People. The episode concerned Okines' trips to Boston for treatment.

Books Okines' first book, Old Before My Time, chronicled her early life and struggle with progeria.

Fundraisers Although the United States' Progeria Research funded Okines's treatment, her family had to fund the air fare.

In December 2010, Okines met Justin Bieber after a group of people started an awareness campaign on Twitter.

"Voices of Tomorrow" When Jane Winiberg saw a progeria television special, she and Mark Street wrote a song about Okines and other children. The Kids Choir 2000, which included Okines, performed the vocals on the song, titled "Voices of Tomorrow". "Life Will Find a Way" is another similar track on the album, and the profits are being donated to the Progeria Research Foundation.

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Important facts

Birth century
Occupation
Nationality
Known for
Progeria
Education
Bexhill College, Bexhill High Academy
Also known as
Hayley Leanne Okines

Frequently asked questions

Who was Hayley Okines?

British activist and author with progeria (1997–2015)

When was Hayley Okines born?

Hayley Okines was born on 3 December 1997 in Arrington.

When did Hayley Okines die?

Hayley Okines died on 2 April 2015 in Bexhill-on-Sea.

What was Hayley Okines's occupation?

Hayley Okines was an activist.

What was Hayley Okines known for?

Hayley Okines was known for Progeria.

What nationality was Hayley Okines?

Hayley Okines was British.

Sources & further reading

· Wikipedia: Hayley Okines

· Wikidata: Q383767

· DBpedia: Hayley Okines

Cite this page

APA: Biography.guide. (2026). Hayley Okines. https://biography.guide/hayley-okines/

MLA: "Hayley Okines." Biography.guide, https://biography.guide/hayley-okines/.

Chicago: "Hayley Okines." Biography.guide. https://biography.guide/hayley-okines/.

Data last updated: 2026-09-22 · Spot an error? Report a correction.

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