Brooke Eby

Brooke Eby (born December 22, 1988) is an American social media personality who was diagnosed with the terminal motor neuron disease amyotrophic lateral sclerosis (ALS) in 2022. An advocate for people with the disease, she has shared her experiences through social media. She is the founder of the support network ALSTogether.

Early life and education Eby was born in Potomac, Maryland, and grew up in a suburban home with her family. She graduated from Lehigh University in 2010.

Career Eby began her career in the business sector, holding positions in cities including New York and San Francisco. She was diagnosed with ALS in 2022. She continued in her role at Salesforce as the disease progressed, adapting her work setup as needed.

In 2023, Eby founded ALStogether, a Slack-based community designed to connect people with ALS and their caregivers to share resources and support. She also participated in public speaking engagements at corporate and nonprofit events and conferences.

Eby has participated in research studies and collaborated with other ALS patients to share insights and experiences.

Personal life Eby first experienced symptoms of ALS in 2018, starting with tightness in her calf and difficulty walking. She was officially diagnosed in March 2022. As the disease progressed, she transitioned from walking aids to a wheelchair and moved back to her parents' home in Potomac for additional support.